So I figured I'd updated everyone on what's all going on. If you're a returning friend or family member you've probably already heard about most of this. If you're a new visitor let me start off by saying, hello and thanks for stopping in.
Yesterday was a very interesting, frustrating, but completely worth it. For those of you who know me, you know that I've been sick since I was about 16. We found out that year that I was allergic to everything under the sun and I was started on allergy shots. Those seemed to be working just fine until about the end of 2009. I started having nausea and the sorts all the time which led to not being able to keep anything down which then caused me to have dizzy spells and sometimes even pass out.
As the months went on I realized blotches on my cheeks that at first glance look like acne but if you look a little closer you'll know that it's anything but. Around the same time was when the pain in my lower back and entire left side of my body starting to hurt and the fatigue really started to kick into full gear. I knew from other family members that these were the signs of lupus.
I was desperate to find out what was wrong with me so that I could hopefully get my "normal" life back and be able to do the things I love without being in pain. I set up an appointment with my local doctor and asked her if she could please run some tests to see if I had lupus. I was hoping they would come back negative but I knew in the back of my mind they more then likely wouldn't.
After waiting the 3 weeks for the results the doctor called me in and said very little other then that yes I do have lupus antibodies and that she was going to refer me to a doctor a hour and a half away at the university. I was confused because of how little the information she gave me was but I took the answer and started doing my own investigating on the disease.
As anyone who is or has been sick and having to go to doctors, you'll probably know that it's wise to do your own research on topics so you'll know the right things to ask and what tests should be done. The person who knows you the best is yourself and only you can know about your type of pain and or sickness more then anyone else.
Well as I was reading through the
Lupus Foundation of America's website it was almost like someone had knocked me upside the head and I finally was seeing the light of day for the first time in years. Many of the symptoms and things that no one could ever figure out was on the list and things like lupus fog (where you lose your train of thought mid sentence) and that allergy shots can cause lupus flair ups. Everything started making sense.
Unfortunately I had to wait from February till July 20th for an appointment with the specialist but I'm happy to say that the wait was worth it. The doctor was amazing, he asked me a lot of questions check out my joints and looked over the red patches on my cheeks. He also ordered more tests to find out how bad the lupus is. 10 vials of blood! I don't recall ever getting that much blood taken at one time before! Thankfully the technician was a nice guy who kept my mind from jumping out my ears and running away by talking to me the whole time.
So despite all the trouble I had to go through to get there. The fact that my local doctor didn't fax over my referral or that I had to wait a whole hour before I could talk to any of the nurses to get them to fax the papers over. I'm glad to be finding out what's wrong and how I can better manage it. Like I've already said before, I'm hoping that this treatment will help and that I'll start to feel better again.
Here are some pictures from the day



All pictures taken with my
camera phone Some were set on the black and white setting, others weren't.
Edited all of these in photoshop.